Am I joining a new club?

Might be! My FMS has been pretty interesting lately. I finally gave in and went to the pain clinic. Was put on an med regimen that seems to help in the pain sphere. A side effect has been loosing more weight. I am down to 148 at last doc visit. One not so fun thing has been a complete lack of appetite. I have never been a large eater but now I actually have to remind myself to eat or I can go the whole day without a bite and not notice. It has however made me notice more when I am having sensitivities to food. My most recent flare began after eating my favorite meal. Chicken fried steak, mashed potatoes, and brown gravy. Within hours I was in the bathroom with stomach cramps that were excruciating. I proceeded to be sick through the night. I was so weak and sick through the next day that I stayed on the couch all day. Then the next day I woke with a horror of a migraine. I think our presidential candidates tried to have a boxing match in my skull and caused my brain to swell. It was awful. I luckily already had an appointment at my clinic scheduled. I am loving them. I was very against going due to my past history with drugs and the horror stories but they are a whole body wellness kind of place. I have done physical therapy there and message therapy. Been great. Anyway my doc had some big concerns. Due to my sensitive stomach she suspects Celiac's or at least some significant food allergy issues. Hence the new club. So I need to find a good GI and get checked out. She also wants me to find a new primary doc. They handle a lot of my needs but some needs need a PCP and mine just hasn't done some things I guess she should be. My hematologist who monitors the lymphocyte issue said as much when I saw him in April but to have another of my team make the same recommend must mean its true. She feels I need more blood monitoring due to being a chronic illness patient. She also thinks I need someone who does more than write a prescription. Which I agree with. I guess I just figured she was doing what she was supposed to be doing. So wish me luck. I am trying to take my health in hand but the road is a long one, longer than I ever dreamed. I had really hoped that a diagnosis would mean fix but at this point I will take what I can get. Much love to all!

Hot potato Lila!

Do you remember as a child playing the game called hot potato? You and your friends sat in a circle and passed a ball as quickly as you could without dropping it. If you let it drop you lost. Now imagine that game and every person in the circle is a doctor. A Hematologist, Primary Care Dr., Rheumatologist, Endocrinologist. They pass that potato so fast it blurs. I realized today I am that potato. FMS makes me that untouchable unwanted potato. Every doc runs a battery of tests just to rule out things so they can prove something else. Finally I thought I had hope. I found a well respected Rhemuatologist. FMS is after all in that category. Went in and she tried some meds and ran her slew of tests. Her meds made me sicker. Her tests agreed with everyone else. I am the healthiest sick person in the world. Today I was told that the nature of FMS makes it difficult for her to help me so she is passing me on to a pain management specialist. I get to add another doc to the circle. I am so frustrated I just sat in the car and cried. I wanted to avoid that fate. I battled during my teen years with a host of things, addiction being a close friend. Maybe I was lucky I faced that so young. I was very healthy and to a teen months feel like eons and I was through my bottom and clean by the time I was 17. It wasn't an easy road. I made it harder for myself by being deceitful and destructive. Then I found my guy and the world seemed to complete itself. I have never looked back and never wanted to. Even before I converted to the LDS religion I didn't drink. I didn't smoke. The only time I ever took a strong prescription was when my girls were born and when I had kidney stones/infection or my wisdom teeth pulled. I don't even allow them to numb me at the dentist anymore. So this prospect has me very upset. I do not want to take pain drugs. The thought of risking that just terrifies me. Yet it has also been shown that so far the biggest proven help for FMS is pain drugs.

This potato is so overcooked.

Another post about female stuff

Sorry guys, if you don't feel comfortable reading about those certain female Dr visits skip this one. (I have another post coming up that will be more to your preferences, I promise)



So I had to go to the Dr to have an IUD removed. It was supposed to be removed 2 years ago and I was really worried about it. I fretted and stewed and finally made the appointment. Three weeks I watched the calender and tried not to think about it. The day before the appointment, 5 minutes before closing time, they called and left a garbled message on my machine about being canceled. They asked me to call them back with any questions. So first thing next morning, I called and asked them why my appointment had been cancelled. I was told it was because I had requested a transfer to another Dr. Ummmm, no I really didn't. What happened was, I needed an appointment last year and my Dr was on vacation, so I went to another Dr that one time. Apparently my Dr's office has a policy that if you ever go see another Dr for any reason, they refuse to ever see you as a patient again. PISSED ME OFF! I go to this Dr because she is the only female gyn in the area. I really, really, really don't feel comfortable going to a male gyn.

I picked up the phone book and called another gyn (the one I had gone to last year when I couldn't get in with the other one) I got an appointment for the next day. Now I am a bundle of nerves, pissed off nerves and scared to death nerves lol.

Anyway there really is a survivalist message here and I will get to that now. I don't want anything unnatural and foreign in me anymore. I have no choice about the hardware in my leg, but the only other way to make sure I don't have any more children is to have a small spring inserted into my fallopian tubes. It basically tears them up until they scar shut. Sounds pleasant, huh? So Hubby is going in to get snipped. He is giving me tons of grief and working every angle to get out of it. Trust me, if I could find a Dr who would do a tubal ligation, I would go in and have it done. None of them will do it right now, they are all using the spring. I would just worry about something happening with that spring if the world as we know it were to end. Where would I go, what would I do? I would be totally screwed if anything were to go wrong with it.

Just my 2 cents, it's something that has been on my mind for quite a while.