Friday, September 28, 2012

Am I joining a new club?

Might be! My FMS has been pretty interesting lately. I finally gave in and went to the pain clinic. Was put on an med regimen that seems to help in the pain sphere. A side effect has been loosing more weight. I am down to 148 at last doc visit. One not so fun thing has been a complete lack of appetite. I have never been a large eater but now I actually have to remind myself to eat or I can go the whole day without a bite and not notice. It has however made me notice more when I am having sensitivities to food. My most recent flare began after eating my favorite meal. Chicken fried steak, mashed potatoes, and brown gravy. Within hours I was in the bathroom with stomach cramps that were excruciating. I proceeded to be sick through the night. I was so weak and sick through the next day that I stayed on the couch all day. Then the next day I woke with a horror of a migraine. I think our presidential candidates tried to have a boxing match in my skull and caused my brain to swell. It was awful. I luckily already had an appointment at my clinic scheduled. I am loving them. I was very against going due to my past history with drugs and the horror stories but they are a whole body wellness kind of place. I have done physical therapy there and message therapy. Been great. Anyway my doc had some big concerns. Due to my sensitive stomach she suspects Celiac's or at least some significant food allergy issues. Hence the new club. So I need to find a good GI and get checked out. She also wants me to find a new primary doc. They handle a lot of my needs but some needs need a PCP and mine just hasn't done some things I guess she should be. My hematologist who monitors the lymphocyte issue said as much when I saw him in April but to have another of my team make the same recommend must mean its true. She feels I need more blood monitoring due to being a chronic illness patient. She also thinks I need someone who does more than write a prescription. Which I agree with. I guess I just figured she was doing what she was supposed to be doing. So wish me luck. I am trying to take my health in hand but the road is a long one, longer than I ever dreamed. I had really hoped that a diagnosis would mean fix but at this point I will take what I can get. Much love to all!


  1. If it is Celiac Disease, the gluten free diet will help pretty quickly. You might also have some trouble with lactose and other grains until your gut heals, but most people can re-introduce them slowly after a period of time.

    I hope that whatever the problem is, you can get a diagnosis and you can also get some advice on how to deal with any changes you have to make. Oh, and keep eating gluten until you have the tests done... otherwise you can get a false negative result.

  2. I have to concur with Ellen on the Celiac. One of my close colleague's wife had similar symptoms and that is what it was. She did a fruit/veggie juice cleanse for a few days to heal then started in gluten free. She is a picture of health now.

    But whatever it is, I do hope you get answers soon. Hugs.


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