Wednesday, August 28, 2013

Spike update

The EKG was finally read after two weeks. It's still nothing definite, but they think he has RVH, which means the right side of his heart is enlarged. They also think think that he has long QT syndrome. Definition here:

   Long QT syndrome (LQTS) is a heart rhythm disorder that can potentially cause fast, chaotic heartbeats. These rapid heartbeats may trigger a sudden fainting spell or seizure. In some cases, your heart may beat erratically for so long that it can cause sudden death. 
You can be born with a genetic mutation that puts you at risk of long QT syndrome. In addition, certain medications and medical conditions may cause long QT syndrome.
Long QT syndrome is treatable. You may need to limit your physical activity, avoid medications known to cause prolonged Q-T intervals or take medications to prevent a chaotic heart rhythm. Some people with long QT syndrome need surgery or an implantable device.

We have an appointment with the pediatric cardiologist on the 11th. Would appreciate any prayers, good vibes or whatever you believe in.

Tuesday, August 27, 2013

Lost my mojo.

These past few months I feel like the wind got sucked from my sails. Damsel has become impossible for me. I don't have the health for weekly parties and events and Facebook blacklisted me so my reach dropped substantially and no one was ordering. I adore the company with a passion but the biggest online networks include non-lethal self defense in their anti-weapon agenda and that just has made Damsel beyond hard.

The junior league I was working with became worse than high-school with the teenaged drama, name calling,  and backstabbing. So I walked away from my board position as the rule we try to live by is keep things as stress free as possible since the stress makes my fms worse.

I also haven't improved like we hoped. We think the climate is part of the issue. We spent a week in Wyoming and for those few days I was almost pain free. So we are hoping to find work out of the desert.

I am homeschooling Bug this year. Some of her group developed some awful risky behavior and I don't want her immersed in that. I honestly think that here in Vegas the kids are exposed to so much vice they experiment even younger than other places.

I've decided to focus on my writing again and on my passion for preparation and all the other great things I used to write about. I want to get back to reading my favorite blogs and connecting with the friends I've been neglecting as I tried to do Damsel.

So hopefully this is me climbing out of a dark place and getting back to the things I love. Sure missed you all.

Thursday, August 15, 2013


   Spike blacked out twice yesterday morning. We spent three hours in the ER with low blood pressure and low blood sugars. He had his first ever blood draw and took it like a champ. He had an EKG that came back abnormal.
   Today I took him into his doctor who ordered more labs and referred us to a pediatric cardiologist. The lab tech wasn't paying attention to what she was doing and let the needle slip out of his arm. Then she tried to put it back in the same vein and blew the vein. She dug around in his arm for a while before giving up. He was in a lot of pain and terrified. He didn't move a muscle while she dug around in his arm with that needle. But now he has to go back tomorrow and I don't know how well he will take that.
   I am the kind of person who does very well in a crises and breaks down afterward. Right now I am pretty freaked out.