Pregnancy and Infant Loss Awareness Day

Those who've put up with us for years know my passion for this day. I am open about all of me, my fibromyalgia,  my childhood,  my rights activism. I am also very open about the babies I've lost. I think there is no greater despair for a woman. It's the loss of a child but with the added knife twist of many not wanting to talk of it, to support the parents.

As soon as you get a positive test you envision the child's future.  Even if you aren't ready for motherhood or never wanted it for those moments and days following a positive test your brain swirls with the what if.

For the mother who miscarries that potential is suddenly gone, sometimes in a very traumatic way. The vision disappears.  And you are left alone. If you are lucky you dreamed with your spouse and he at least feels that emptiness with you.  Often it's just you. Alone in your body. Alone with your shattered dreams and expectations. 

My first pregnancy I was 17. I was terrified. I was doing my junior and senior years together. I was working 30+ hours each week. I fully expected the guy to walk away. To my shock he was stronger than I. He was there for me every moment, he proposed. So when we lost the pregnancy at 12 weeks he was as devastated if not more so. He gave me space but we did marry anyway about a year later. Then our Bug was born 10 months after that.

When she was 4 we were ready again. It took years. Then I got that test and I had never been so excited. A week later we lost it. I felt this loss so much more. We had been trying so long, I had about lost hope. Then I got a taste. My doc refused to test for anything until I had 3 consecutive losses.  So we got a new doc. She discovered hormone issues and when I got pregnant again immediately put me on added hormones to help. I carried our Monkey to term.

I was diagnosed with my fms when Monkey was about 9 months. It answered a lot. Infertility is common in fibromyalgia.  Hormone issues, womb issues.

So now we are going to try again with IVF. The extra help and monitoring we hope will help us. Not a day goes by where I forget about my lost angels though. I feel that loss all the time. I think it is a loss that never goes away.

A loss is never the end.

Today is National Pregnancy and Infant Loss Awareness Day. After I worked my way through those first months of grief and anger and fear I have not been shy about talking about my losses. I think the more society is aware of how truly prevalent this horrible tragic experience is the less it will be a hidden and taboo subject. I heard someone say recently when being asked when they would "Get over" the loss of their child "You never get over anything. That was my child and I lost her BUT I can move forward and I am. She would have wanted me to continue to live my life." For me that is such a truth. I still have moments where I ache. I have moments where I wonder what our lives would be like. I have even blogged on those feelings before. I think every parent that has lost their baby has rough moments no matter what comes after in their lives. It doesn't matter to us if we were pregnant for a week or we carried to term and suffered our loss later. Those little innocent beings were our babies. They were a piece of us. Sometimes we NEED to talk about them and all we need is for others to listen and to let us talk. Our grief is valid, our heartache is real. Those of us who are lucky enough to have validation move forward in a more healthy way but we shouldn't be the only ones. Every single parent who looses a baby should be able to get the love, support, and validation that they need. They should be able to talk openly about their experience without fear of others judgment, comment, or heaven forbid ridicule. Every other baby-loss parent I have talked to has said the same thing to me. They want to be able to have a weak moment without feeling like it's wrong to feel that way. If we start to talk to you about it out of the blue then it is probably a weak moment. Our breath has rushed from our bodies, our hearts of cracked a little and in that moment we have to talk about our loss. Listen. Don't turn away, don't pat us on the hand and say quiet platitudes. We know we will get through it because we work on it every day. Just let us feel what we feel and once the moment has passed and we have expressed what we needed to and feel like you understand and care we will probably get back to the joys and turmoil of life. When you are a parent and you suffer this loss you are forever changed and you need to be able to be changed and not hide it away and pretend it never happened. It doesn't just go away. A loss really is never the end of anything especially when it is a loss like this.